I was looking at some pictures on the Internet, and what happens when you have a stroke - which part of the brain takes care of things. I had the stroke on the left hemisphere of my brain, which explains a lot of the issues I now have.
Sometimes, I wish, I would have had the stroke on the "right side" of my brain 😉 because it would have made it a bit easier for me. The right side produces dreams, responsible for musicality (not such a big deal), drawing pictures (again, not a big deal to me 😏), and creates emotion (I'm not going to say it, those who know me, will laugh as well). There are other things, and you can read them if you'd like.
The core of who and what I am, is represented by the left hemisphere - those who know me, can attest to that. The left side controls language skills, speech, memorizing facts and names, reading and writing abilities, and controls science and math capabilities. WOW!!!! All of these things are me (or used to be, before I had the stroke). So this is why it is so difficult for me to get back to the things I was good at, before I had the stroke! (Or even half of what I was good at before I had the stroke 😮.)
Now, I am trying to look on the bright side (and it's a struggle these days as I have said in previous postings of my blog). If I would have had the right side of my brain impacted - I'm not sure if I could drive anymore, I might have been in a wheel chair or would have to use a walker full-time, and it would be difficult to judge where I am in relation to spatial orientation, and I would be challenged with multi-tasking and parallel processing information. Okay, so maybe it would have been so good either!
Having said all this and the issues I have had with depression and everything, it might help me to take sometime away from social media, just to get my "head" back in the game (and with the beginning of Lent starting - it might be a good thing for me)! It can't hurt, at least, and eventually I'll be back!
There are a few things in the next couple of weeks; I have a volunteer training session at the Edmonton Humane Society, to volunteer with the animals; and there is an educational assistant information session, with the EPSB, so I'm going to check it out to see if that is an opportunity that I want to explore. Also, I have put in an application for volunteer work at the Grey Nun's Hospital that I am waiting to hear back from. Oh, and I still have to get a hold of the BIS Toastmasters to find out which Thursdays they meet, because it would definitely help me with the oral communication. There is a bit going on, so we will see what happens!
This is about me having a stroke, right from the beginning, through the recovery and what it means to me and all the people around me, that have to deal with it. It's about a brain injury and everything I have to do to get back to "normal" or at least what I think is normal now. I should tell everyone who is reading this, if something it not spelled right, please forgive me...that's another thing I am still working on!
Saturday, 9 March 2019
Sunday, 3 March 2019
Abuse
I spend some of my time with different groups that have something to do with brain injuries whether it be for support, therapy or how to do things differently now that I have had a stroke. I'm going to share this from one of the groups - I won't tell you which group or anything like that - because it is supposed to be confidential but I also believe people should know about it and that they should report it, if it does happen to someone you know.
I was at one of the groups and there was a woman who has a brain injury. She can't say very many words and it can be difficult to get things out when she needs to tell someone something. You really have to be patient with her, and that's all right! She started telling the group that there was a call on her answering machine - it was from the police. They were wondering if she could come down to the Police station and do a video recording session with them. She went on to say "it was good that they are taking an interest in her". As she kept talking (I finally realized), she had suffered a sexual assault by her neighbor (the person that lives on the floor above her). She was more emotional about the fact that the police wanted her statement that what actually happened to her! She spoke a bit more and told all of us, that this was the SECOND time (I couldn't believe it), it happened. Now the group leaders with this group, know her very well, and they are helping privately with her to get some help with all of this (I want all of you to know this).
I think about child sexual abuse and senior sexual abuse that goes on, because it is in the news and everything; but also it goes on with the disabled, too. It must have been very difficult when it happened to her, who does she go to and what to do afterwards. I really must give my support and kudos to this woman - firstly because she told all of us in the group and because even in her current state, she is thinking about her next steps with what she should do and how she should do it. I think she is an amazing woman to share this!
Tuesday, 5 February 2019
I'm not going to apologize for not writing for a while, because I really didn't feel like sharing (or anything really). It's the New Year and I'm not sure that this has anything to do with it, or maybe it's the fact that Bell Let's Talk has gone by - but I'm suffering from depression. There is no really other way to explain it.
Now before everyone bombards me with "gee you should be happy, you survived"; "look how far you've come"; "we love you any way you are" or whatever else you can think of. People have the misconception that if something's wrong - you don't talk about it, you figure it out on your own and move on. It isn't as easy as that. Now I also realize that there are many, many others who have depression worse that me. I also know there are mental health problems that I know NOTHING about, but I want to say - depression and all the other mental health issues are REAL. No amount of "doing it on your own" will make it go away - you have to talk to someone. It maybe family/friends, a doctor, psychologist or a psychiatrist. But everyone has to know - it is real!!
Over the past month or two, I have often thought "maybe it would have been better, had I not survived the stroke". I don't want anyone to comment on this - I am NOT going to harm myself - I just want people to know this is what happens sometimes. I can't find a job that I can do any more and it is really discouraging. With all the work I've done - it just isn't enough. Now I know, you can volunteer - sure except the same things happen if I do volunteer - I can't speak clearly, it's difficult for me to get out what I want/need to say, my English is awful and right now, my math skills are terrible, too. Really, there's only so much house cleaning, walking the dog, and the various art projects I can do before it gets old. I also do realize, it gets very tiring and cumbersome for my whole family to read this again and again. So now, sometimes when we get together - it's much easier for me to be "busy" fixing a meal or when they want to go out for a meal or to a concert, I send Richard out and I stay home because I don't feel like being around anyone. I know, it is crappy for me to do this, but it is how it is.
I'm hoping that these feelings will pass, and I will get back to my old "positive" self but for now, this is what I am going through and I figured I'd let everyone know and this is the easiest way to do this. Stay warm everybody...
Sunday, 12 August 2018
Good Days and Bad Days
So I’m sitting here thinking about the last couple of months, and now I’m wondering "What I do now?".
I gave my notice at my job a couple of weeks ago. There were a number of reasons - they were really very slow on getting me the new software we were going to be switching to; some people were really not very good when I would ask them about certain items; I couldn't get answers when I needed to get them - and so on. BUT the most basic reason is because I couldn’t remember the basic things. I had to ask the woman responsible for my training, time and again how do I do certain things. Now I realize some people need reminders (and that's fine because we are all getting a little older 😉), but mine were different...I had to constantly ask “how do I find things; how do I do this again; how do I do the filing or how are things filed” and so on. Everyday it was the same questions that I had to ask...I made the adjustments - taking notes, I took items and photocopied them so I would remember the next time (but the next time I had to ask again to get clarification), I constantly had to go back to the notes to find out how I did things and WHY I did them. The last three weeks I was at the job, I had terrible migraines - and I had to miss one day because I couldn't even get out of bed. I finally went to the doctor because I thought something was wrong...and really, it was from the work...it was too much for me to cope with.
It was frustrating for me to give notice and really there may be one or two friends but aside from them, only my husband and my kids know I am not working now (well until I publish this blog). People who know me and know what I used to be able to do - it is embarrassing to tell them, "I can no longer do the things that I used to be able to do (without even thinking)". Sometimes, I will admit, it is due MY OWN embarrassment and other times they don't really know what I am going through or sometimes they don't really know what to say to me to keep me "thinking positive". I'm here to tell everyone (who reads my blog 👌)...IT'S OKAY!!! Sometimes I get down on myself but I always come back (some days it can take a little longer than others).
I filled out the paperwork to receive my LTD benefits through Revenue Canada...I still have a couple things I have to get before I can sent them in but WOW...if you would have told me five years ago I would be looking at this...well I would have laughed at you...but you know...you can never guarantee anything in life...well except for birth and death (just saying 😏). So now as I sit here and I have given this "secret" away, what do I do now, comes up (again).
I am still doing my workbooks at home because there is no way I am getting better without doing them (big deal Grade 6 now), and I am taking a couple of computer courses through the Edmonton Public Library (Excel and keyboarding and then I will take Excel II and Word through EPL as well). But at the end of August I meet with my speech therapist, Meg, for the last time. There is not much more for her to do, I've come as far as I can.
I did get accepted to go to The Brain Centre to meet once a month with the Women's Group, so that's good news! I also have a number of resources to look into with respect to getting some more skills back i.e., Toastmasters; Stroke Recovery Association of Edmonton and there are a number of places that I can volunteer with (I just have to find the right group to go through). I guess what I am trying to say, is I'm still working on my recovery, but I suppose everyone is working on something 😀!
Friday, 27 April 2018
Something to think about...
The Canadian Disability Tax Credit, WOW, who ever would have
ever thought I (at the age of 51) would need this. But that is what I did this week, I took it
to my doctor to fill out so that Richard could apply for it on my behalf. That is how much life has changed for me
since I had the stroke. I’m not going to
go into all that because quite frankly, if your reading this, you already know
and those who aren’t, well it doesn’t really matter to me. Really, now I have to get used to THAT!
Now there are some good things (quite a few, actually) that
have been going on as well. I have an
appointment with The Brain Centre with respect to my computer skills, hopefully
they will be able to give me some “cheat sheets” that I can quickly look up
things that I used to know in Word and Excel.
It is really difficult for me to “know” I used to be able to do
something before the stroke but I can’t process step easily now. I am still waiting for a callback from the
Women’s Support Group at the Brain Centre but hopefully I should get a call in
the next couple of weeks, it will definitely help me to get around people that
have a brain injury and how they are coping with the difficulties now.
Another thing is that I have started a part-time, Accounts
Payable Clerk position! It really is
nice to get back into the work-force.
Now, I definitely can’t go back to a full-time Property Manager, but
this position will challenge me, and I have many years with budgets and all the
stuff that goes with it, so I really think this is a great position for me
right now. The company is going to
launch a new software system next month, and I’m looking forward to helping
with that too. I can only hope things
will come back to me, although it may be slower that I’m used to…but that is
okay with me, at least I am getting out there.
There are several things that I could be unhappy about, but
I have to think ahead, and I would rather think of the “glass being half full”
than thinking of the “glass being half empty”.
Also, there are a lot of things that haven’t changed, yes Allan Carr, I
am sarcastic (when I choose to be) and really, I do love to laugh (at myself
and others 😉) because life is really to short to do anything but look on the
bright side!!
Monday, 16 April 2018
A New Position...
It's been about a couple of months now since I've written something here. I did go to Houston to visit my friend, Sonia. Also Ramona and Denise were there at the same time. I was so very good to see all of them. Ramona and Denise stayed for four days and I stayed for six days. The weather was gorgeous and there were a lot of laughs while we were there.
I also did get a job with Veratis but before everyone get's all excited, I did give my notice for a couple of reasons, after about a month at it. The first was I had to speak a lot the people and really that has changed since I've had my stroke. It is very difficult at times, and with the problems I have finding words (yes, I even had a script to follow and I practiced it quite a lot), but really I couldn't get past it. Also, I believe a different person would be better able to support the woman in charge. But it was a good experience and I'm not going to find anything unless I get out there and try different jobs.
Now I started a part-time position with Raven Truck Accessories as an accounts payable clerk. I believe this is the position for me...at least for now!!! It is part-time, so I can keep seeing my therapist at the Glenrose; and I will also be able to go to The Brain Centre for some more courses. I work Tuesday, Wednesday and Thursday from 9:00 am to 3:00 pm, which is perfect for me as well. There isn't much telephone work, that is a good thing, again because I have a challenge with it sometimes. They are getting a new software system in the beginning of May, and I will get all the training I need so I can be successful. So wish me luck 😊.
There are things that are proving to be a bit of a challenge to me because of the stroke. My language and math aren't where they used to be. I know I have repeatedly told everyone on here, but it does frustrate me so very much. I was looking on Pinterest and found the diagram at the start of this post. These are the things I have trouble with and I will from now on. Again, I think other people have a bit of trouble processing that I will never be the same person I was before I had the stroke, and that is very difficult for some people to get over. But I can't help it, so I would hope that we can find some way for BOTH of us to adjust and continue on with this journey.
The one thing that this cartoon brought to my attention, was that I am aware of the deficits - sometimes I think it would have been "better" to have the stoke impact my Right CVA, because likely I wouldn't "know" about the deficits and really that would have it's advantage as well. But you have to take was is dealt to you (I'm not going to get into THAT right now 😉). But I am dealing with it, some times more positive that other times - but that's okay too!
Sunday, 25 February 2018
Things Are Different Now
I have realized over the past couple of months, I have to accept life has changed for me (and for Richard Makarowski). It is coming up three years since I have had the stroke. When I think back, boy was I really quite silly to think, in a couple of weeks I'll be back the way I was before the stroke. I didn't realize (now you have to remember I couldn't walk, I couldn't get out more than a word or two and I couldn't even access my I-phone because I couldn't remember the password to unlock the screen), that it would take me this long to get back to some form or normalcy.
I really have to thank my family and friends for sticking by me (all of you), because I don't think I could have survived with out you. It is really difficult to say, but the past couple of months have been difficult because I really didn't want to talk to anyone and I certainly didn't want to have anyone over because I have change. I can't go back to the way I was before, because my mind doesn't work the same way. Gone are the days when I could figure out Excel spreadsheets, talk to people (because now I have to really think of the words I want to say), the typing is difficult because I really have to read the words to make sure they make sense. It has really changed everything for me.
I have to say thank you to Traci Camplin Christenson, because with out her, I wouldn't have been about to keep my Real Estate license, so THANK YOU 👍. I also have to thank the Makarowski's because without all of you, well I don't know what I would have done 😉. From all the travelling we didn't over the past couple of years, it was difficult for me to keep up but you guys were there to support me in any way you could. My dear sister-in-law, Rayan Makarowski, you came to our house for your treatment but I can't say enough, how much you helped me just by being here, I love you and you can stay anytime. Michelle Berg and Kimberly Schick-Puddicombe, the two of you have helped me with simply talking when I needed to (Kimberly Schick-Puddicombe had a brain injury too, so it was nice to chat with her because she actually knew what I was going through). Noreen Muth-Hayden, you helping me with the questions I had about becoming an independent contract (and I probably will still have questions 🙄). And I definitely have to thank Terry Churchill Makarowski, you are my strength when everything seems to be going no where (or really, really slow and when I just have to complain about everything without judging me 🙂).
I was at the Glenrose, with my speech therapist, Megan Petryk, and she said something that makes sense to me now, "I am not the only one changing, everyone around me has to accept I am different now. If they can't, it doesn't mean that there is something wrong with me, it just means they can't accept the way I am now, and that's okay too".
Have a wonderful Sunday afternoon and happy birthday to Jackson Makarowski (you definitely make me laugh, in a good way)!
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